Feeding Therapy and Glycogen Storage Disease
Glycogen Storage Disease, VideosOn July 21, 2012, GSD Life hosted their first Family Social. Leslie Sparkuhl, M.S., CCC-SLP gave a very informative presentation regarding feeding disorders and how to treat them- specifically for those with Glycogen Storage Disease. Her expertise as a speech and language pathologist, combined with her experience as an aunt to four children with Glycogen [...]
Boise to Host Northwest Gathering for Rare Metabolic Disease
Glycogen Storage DiseaseGSD Life is a nonprofit based in Meridian, Idaho with 865 members spread across every corner of the globe, which is dedicated to raising awareness and improving quality of life for those with Glycogen Storage Disease. GSD Life will host a Northwest Gathering of members from the northwest United States and Canada, featuring a lecture [...]
My GSD Life: Living with McArdle’s Disease.
Glycogen Storage DiseaseSwimming was torturous, strange, acidic. Bewildering. I know that’s why entering the water was such a violent experience. The crash and jolt of icy silver cold, the stray bubbles being pushed and spun around, the suddenly muffled tones and voices from above the surface. I always thought I could anticipate that moment – the moment when my [...]
