To all GSD Life members: We are starting a new awareness campaign called “My GSD Life”, and we need your help! We need a video of you and what your GSD Life is like. Goal: Spread inspiring awareness of Glycogen Storage Disease. Who: ANYONE affected by GSD. That means not only the person with the […]
As the summer comes to a close, many parents of school aged children with Glycogen Storage Disease begin meeting with teachers, principals and nurses to ensure a healthy and safe learning environment. If your child attends public school in the United States, you will need to meet with the school and form an Individualized Health […]
Bethany and Garin Cruz discuss what life is like with Glycogen Storage Disease, and how local hospitals are working with Dr. David Weinstein, director of the Glycogen Storage Disease Program at the University of Florida, to improve medical care for patients with GSD in Utah. Read the entire article at Deseret News.